Day +66

Its been a hectic week of clinical visits, procedures, blood draws, you name it. 

Ultrasound today confirmed a diagnosis for the horrible, bloated belly.  Its "ascites", the fluid buildup outside the organs in the surrounding tissue.  They've got me on a special med (specialized diuretic), but they are going to schedule a procedure to remove the fluid.  They are literally going to lay me down, poke a hole in my abdomen, insert a catheter, and drain the fluid out.  They say it will bring instant relief, and I'll leave the procedure with an abdomen that looks pretty much normal without any fluid.

I'm impatient, so I can't wait for the procedure (even though I will be awake through it).  Heck I'll bite a stick if they want me to.  Just get this fluid out of me.  In the meantime, I continue to take the medicine.

The imunoglobulin infusion is scheduled for Thursday, so we'll see how that goes.

I just wanted to drop a few updates today.  Everything remains unchanged.  I'm just taking it as it comes.